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Members' feedback

"I'm finding it shocking and surprising the number of new people joining the community. Let me explain. I was diagnosed with AVN first in both knees back in 2005, over the next few years it was found in both hips and shoulders. I had never come across AVN before and felt like I was the only person with it, I was always having to explain to people what it was."
 
"Thankfully I found this website and community over a year ago and realised I was not the only one suffering with AVN, it has been such a help talking to fellow sufferers who understand what I am going through."
 
Text taken from a recent post in our community forum.

Join us

If you are suffering from avascular necrosis AVN Osteonecrosis ON, or are close to someone that is, please consider joining our AVN Charity UK community. You will find many shared experiences about AVN and how it affects each of us differently, importantly there are also excellent success stories about the road to "Pain Free".
 
We also welcome any health professionals who are involved in any way with Avascular Necrosis AVN, please let us know how you think you can help.

Taking care of your jointsAvoid awkward liftingAvoid awkward lifting

When you have avascular necrosis AVN it is important to look after the affected joints and also to protect your other good joints. This might mean learning new ways of carrying out everyday tasks to reduce the stress on all your joints.

To protect your joints you should:

  • Pace yourself throughout the day.
  • Notice which actions and movements worsen the pain.
  • Avoid straining joints by doing things awkwardly.
  • Avoid being in one position for a long time.
  • Keep active with exercise, but balance any activity with rest.
  • Try to stick to a healthy weight.

Practical changes at home and at work

Depending on the joint or joints affected, to protect your joints from collapse you should consider how you carry out everyday tasks such as washing, dressing and going to work. There are some simple changes you can make to minimise the risk of damaging your good  joints.

  • Sit down whenever possible, taking the weight off your legs and hips.
  • However, try not to sit in the same position all day – take regular breaks and move around.
  • Walk with the aid of a stick or crutches can give considerable relief to AVN weight bearing joints, there is nothing wrong with using mobility aids.
  • Consider using a wheelchair for extended mobility, rather than put additional strain on your joints.
  • Spread the weight of an object over many joints – use both hands to carry your shopping or use a shoulder bag or back pack.
  • Shift rather than lift items – example slide heavy pans along a kitchen unit.

An occupational therapist can assess you in your home or workplace and suggest simple adaptations to the way you do things to reduce the chances of damaging your joints. They can also suggest special equipment that you can buy to make some tasks easier.

ExerciseSwimming is good for youSwimming is good for you

Maintaining muscle strength is very important, for example if your left knee or hip is affected by AVN , the body automatically protects itself by altering the gait by introducing a limp. This limp means that the right side then takes over as much as it can, muscles on the left can quickly start  lose their tone. Muscle loss can occur very quickly.

To overcome this a regime of exercise must be taken.

Strengthening exercises help strengthen the muscles which support your joints.

Range of movements exercises maintain strength, good posture and flexibility.

Swimming is an excellent form of exercise. 

Last Updated on Sunday, 09 November 2014 14:07