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Members' feedback

"I'm finding it shocking and surprising the number of new people joining the community. Let me explain. I was diagnosed with AVN first in both knees back in 2005, over the next few years it was found in both hips and shoulders. I had never come across AVN before and felt like I was the only person with it, I was always having to explain to people what it was."
 
"Thankfully I found this website and community over a year ago and realised I was not the only one suffering with AVN, it has been such a help talking to fellow sufferers who understand what I am going through."
 
Text taken from a recent post in our community forum.

Join us

If you are suffering from avascular necrosis AVN Osteonecrosis ON, or are close to someone that is, please consider joining our AVN Charity UK community. You will find many shared experiences about AVN and how it affects each of us differently, importantly there are also excellent success stories about the road to "Pain Free".
 
We also welcome any health professionals who are involved in any way with Avascular Necrosis AVN, please let us know how you think you can help.

Who are we?

Nobody special, just a small voluntary group of fellow sufferers of avascular necrosis AVN who are frustrated at the lack of resource, research and awareness in the UK and Ireland for this awful disease.

There are Facebook and Yahoo groups, however we felt that something was missing for the UK and Ireland - it is as simple as that.

Please join in to learn from our experiences, and perhaps become part of what we are creating.

 

Charitable Trust

As of summer 2014 we are now formed as a small charitable trust.

 

Campaigns for AVN

Campaign No. 1

As we are very new, our first campaign is the creation and launching of this website, our first step in spreading the word and awareness of what we are doing for UK sufferers of AVN.

The website content should be available to all, and should be very easy to navigate.

We are planning to include many articles about AVN that help everyone understand this condition a little better.

Last Updated on Sunday, 09 November 2014 13:51