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Members' feedback

"I'm finding it shocking and surprising the number of new people joining the community. Let me explain. I was diagnosed with AVN first in both knees back in 2005, over the next few years it was found in both hips and shoulders. I had never come across AVN before and felt like I was the only person with it, I was always having to explain to people what it was."
 
"Thankfully I found this website and community over a year ago and realised I was not the only one suffering with AVN, it has been such a help talking to fellow sufferers who understand what I am going through."
 
Text taken from a recent post in our community forum.

Join us

If you are suffering from avascular necrosis AVN Osteonecrosis ON, or are close to someone that is, please consider joining our AVN Charity UK community. You will find many shared experiences about AVN and how it affects each of us differently, importantly there are also excellent success stories about the road to "Pain Free".
 
We also welcome any health professionals who are involved in any way with Avascular Necrosis AVN, please let us know how you think you can help.

Different stages of Avascular Necrosis AVN and surgical potential for each stage.

This table is for the different stages of avascular necrosis AVN in the hip, but can be a guide of other joints. It is clear that surgery can only be done in Stage 1, 2 or 3, after that joint replacement looks to be the only solution.

Stage

Clinical

Surgical potential

Stage 0 Theoretical stage:
Asymptomatic.
All diagnostic tests are normal.
Biopsy from histology - is the only
abnormality.
None Required:
Theoretical stage only
Not a clinical problem.
Stage 1 X-rays and CT-scan are normal
MRI and Tc99 and histology are abnormal.
Symptoms may or may not be present.

Surgery is possible / desirable.
Core-decompression possible.
Adult stem cell surgery possible.

Stage 2 X-Rays are abnormal -
With linear sclerosis or cysts.
There is no Subchondral lucency
Head of the femur is still spherical.
Surgery is possible / desirable.
Core-decompression possible.
Adult stem cell surgery possible
Stage 3 The femoral head starts to fail mechanically - With Trabecular collapse.
The radioluscent crescent sign is visible at the Subchondral endplate.
The femoral head itself is still spherical
Surgery is possible
Core-decompression possible.
Success depends on degree of changes.
Stage 3a Crescent <15% Surgery still possible.
Stage 3b Crescent 15-30% Increasing risk of failure of preventative surgery.
Stage 3c Crescent >30% Increasing risk of failure of preventative surgery.
Stage 4 Flattening of the femoral head is now seen Preventative surgery NO HELP
Medical Management.
Total Hip Replacement Required.
Stage 4a <15% of the surface is collapsed
Depression <4mm
Preventative surgery NO HELP
Medical Management.
Total Hip Replacement Required.
Stage 4b 15-30% collapse or 2-4mm depression Preventative surgery NO HELP
Medical Management.
Total Hip Replacement Required.
Stage 4c >30% Collapse or >4mm depression. Preventative surgery NO HELP
Medical Management.
Total Hip Replacement Required.
Stage 5 Any or all X-rays features may be present
There is a decrease in joint space.
Secondary Osteoarthritis is present with Sclerosis / Cysts / Osteophytes
Preventative surgery NO HELP
Medical Management.
Hip Replacement Required.
Stage 6 Extensive destruction Total Hip Replacement -
Where available / Possible.