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Members' feedback

"I'm finding it shocking and surprising the number of new people joining the community. Let me explain. I was diagnosed with AVN first in both knees back in 2005, over the next few years it was found in both hips and shoulders. I had never come across AVN before and felt like I was the only person with it, I was always having to explain to people what it was."
"Thankfully I found this website and community over a year ago and realised I was not the only one suffering with AVN, it has been such a help talking to fellow sufferers who understand what I am going through."
Text taken from a recent post in our community forum.

Join us

If you are suffering from avascular necrosis AVN Osteonecrosis ON, or are close to someone that is, please consider joining our AVN Charity UK community. You will find many shared experiences about AVN and how it affects each of us differently, importantly there are also excellent success stories about the road to "Pain Free".
We also welcome any health professionals who are involved in any way with Avascular Necrosis AVN, please let us know how you think you can help.

Affected joints and pain

Affected jointsAffected joints

Avascular Necrosis AVN can affect the following joints in the body:

The most common joints affected Other joints that can be affected
Hips Ankles
Knees Feet
Shoulder Jaw


It is thought (but not proven) that 90% of all AVN cases are in the hips, and that the other joints make up the remaining 10%. However more data is required.

Some people suffer bilaterally; i.e., both hips, or both knees.

Others suffer with multiple sites of avascular necrosis AVN in their body, sometimes known as multilateral AVN, hips, knees, shoulder, ankles etc.

Pain overview

The pain will be different for different people. In the worse case it has been classed as second only in severity to those who suffer from bone cancer, however some sufferers have hardly any pain at all. The onset of pain (if caused by an injury) can be immediate, or it may build up gradually over many months. The most common complaint is continuous chronic pain and of interrupted sleep.

Please look at Pain & pain management for more information about pain and pain management.

Last Updated on Friday, 24 October 2014 10:45